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The Data Resource Center—funded by the Maternal and Child Health Bureau, Health Resources and Services Administration—is working in partnership with Autism Speaks to provide the ASD community with timely access to data and additional resources on a variety of topics and issues experienced by children with ASD and related conditions.
This special topics portal presents measures on the diagnostic experience, access and use of services, and the health and well-being of the child and their family using standardized data on children with Autism Spectrum Disorder and other related conditions from the Survey of Pathways to Diagnosis and Services (Pathways), the National Survey of Children’s Health (NSCH), the National Survey of Children with Special Health Care Needs (NS-CSHCN), and other national surveys. On this portal you will find: Prevalence estimates, parental concerns and perceptions, the process by which the child was diagnosed, access to care, service needs and use, functional limitations, strengths and difficulties, complementary and alternative medicine use, family burdens and parental well-being for children with ASD, Intellectual disability and/or developmental delays.

Highlighted Data & Resources

This tool is an interactive user guide to the sections and questions that are included in the 2011 Survey of Pathways to Diagnosis and Service (Pathways), which is a follow-up survey of children with special health care needs who ever had Autism Spectrum Disorder from the 2009-2010 National Survey of Children’s Health.
The National Center for Health Statistics (NCHS) data brief features measures on diagnostic history and treatment of school-aged children with Autism Spectrum Disorder, and who have special health care needs, using data from the Survey of Pathways to Diagnosis & Services, 2011.
The Data Resource Center has created an interactive table with features that allow users to brose data on children who have Autism Spectrum Disorder by various topics of interest. Each topic includes measures that are found in the Pathways Survey and in the 2009 - 2010 NS-CSHCN. Data from other surveys will be incorporated into the table in the future.